Continuous Monitoring of ERNs

The EU Member States, ERNs and the European Commission have identified the need to establish a solid and valid continuous monitoring and assessment system of the ERNs to allow a closer follow up of the activities performed by the networks. This system should help to build a quality improvement system, to define appropriate outcomes of the ERNs, to identify areas of success and potential pitfalls and to demonstrate the value of the ERNs, ultimately learning from the experience.

Please find all indicators and instructions on how to collect data here

The data collection takes place yearly. The deadline for handing in data for the previous year is always mid-March.

Monitoring of Patient Numbers

The total number of patients referred to your Centre including visits to outpatient’s clinics, hospital discharges and emergencies, coming from both national and international referrals.