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ERNs and cross-boarder healthcare
What is ERN RARE-LIVER?
Types of Affiliation
Members and Partners of the Network
Governance
Patients
The role of patients in the network
How to become a patient representative
Patient Organisations
Disease specific information
Virtual Consultation (CPMS)
Healthcare Professionals
CPMS
File sharing
Disease Specific information
Monitoring
Activities
Training for professionals
Practice guidelines and position papers
Quality of Life
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Other Projects and cooperation
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Biliary Atresia
Metabolic, Biliary Atresia & Related Diseases
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