Clinical Patient Management System (CPMS)
The CPMS is not directly accessible to individual patients. If you are a patient or parent of a patient, and would like more information on the CPMS or virtual consultation, click here
Clinical Patient Management System, known as CPMS, is a secure web-based application to support European Reference Networks in the diagnosis and treatment of rare or low prevalence complex diseases or conditions across national borders.
The CPMS aims at supporting ERNs in improving the diagnosis and treatment of rare or low prevalence complex diseases across national borders of Member States in Europe. The CPMS is a secure Software as a Service (SaaS) that enables health professionals to enroll patients using comprehensive data models. Healthcare professionals can use the CPMS to collaborate actively by virtual consultations within and across ERNs.
Getting started
Before you start, watch this video with useful tips.
CPMS Registration
Full Members and Affiliated Partners can apply for regular accounts. Collaborative Partners and External Experts can apply for guest accounts. A guest account will only be active for a limited time frame between three months and one year or as long as the panel for the case discussion is open.
Registration guide for full users: (Full Members and Affiliated Partners) CPMS Registration Guide ERN R-LIVER: Full user
Registration guide for guest users: (Collaborative Partners and External Experts) CPMS Registration Guide ERN R-LIVER: Guest user
CPMS User Guide and Training for Newcomers
A detailed description of all CPMS features is in the CPMS Official User Guide .
For newcomers, this CPMS webinar is helpful to watch.
Enrolling and removing patients
Before you start, watch this video with useful tips.
Setting up your own panel
Some centres are using a minimal data sheet to summarize the parameters of their cases. To download the sheet, please click here.
Informed Consent
Although CPMS is a secure platform that complies to European data protection regulations, it is mandatory to gain informed consent from your patients before uploading their data to the platform. If there should still be concerns regarding data protection issues, you may enter anonymized patient data. Medical files usually get anonymized automatically by the system.
Patient consent forms for data sharing in all European languages can be downloaded from the CPMS system when opening a new patient record (Centre -> Enrol Patient -> Download Model Consent Forms).
The filled consent forms will remain in your centre.
CPMS Tips and Tricks for file upload
This short support video shows you how to:
- add lab values using a minimal data sheet
- add a Dicom study without ending up with hundreds of singe images (from 0:45)
- upload histological scans (from 1:25)
CPMS Training Platform
Before enrolling a patient in CPMS, you can test the system on the CPMS training platform (https://cpms-training.ern-net.eu/login/) with a dummy case. For login to the training platform of CPMS you cannot use your personal EU login. Please click on ‘To use non-eulogin users, click here (test only)’ and use one of the following user names: rareliverhpuser4 or rareliverhpuser5. The password will be provided by the ERN office upon request.
CPMS Helpdesk
If you need assistance or support when using CPMS, the team is happy to help:
Miscellaneous and Autoimmune Liver Disease: UKE Hamburg: Marcial Sebode, Aileen Franke, Gustav Buescher, Ida Schregel
Structural and Vascular Liver Disease: Radboud UMC Nijmegen: Thijs Barten, Romée Snijders
Paediatric Liver Disease: Rigshospitalet Copenhagen: Mikkel Malham Knudsen
You can contact us by using the contact form.
