Welcome to the page listing all information regarding the ERN RARE-LIVER Webinar series. You can find information on upcoming webinars and access content created as part of past webinars. Thanks to our members and partners, we have managed to produce quite a number of webinars on specialist disease-specific topics.

Our educational webinars are primarily aimed at physicians and nurses, but are open to all. If you would like to suggest a topic, the office would be very happy to hear from you.

Upcoming Webinars 2023

Date and Topic

Chairs/ Speakers

Link to register for the webinar

webinar/panel discussion on OrphaCodes

ERN RARE-LIVER Representatives together with Marie-Cécile Gaillard (OrphaNet)

coming soon


non-invasive diagnosis of CSPH in WD, impact of CSPH in WD

Thomas Reiberger and Lukas Burghart (Vienna)

coming soon

Past Webinars 2022

Date and Topic

Chairs/ Speakers

Link to watch the webinar recording

Biliary Atresia

Ekkehard Sturm (University Hospital Tübingen),
Björn Fischler (Karolinska University Hospital Stockholm),
Orith Waisbourd-Zinman (Schneider Children’s Medical Center of Israel)

Primary Bile acid synthesis defects

Henkjan Verkade (University Medical Center Groningen),
Emmanuel Gonzales (Hôpital Bicêtre AP-HP Paris),
Mara Cananzi (University Hospital of Padova)

The new EASL Clinical Practice Guidelines on sclerosing cholangitis

Annika Bergquist (Karolinska University Hospital Stockholm);
Christoph Schramm (University Medical Centre, Hamburg-Eppendorf);
Ulrich Beuers (Amsterdam UMC);
Olivier Chazouillères (Hôpital Saint-Antoine Paris);
Marianne Samyn (King’s College Hospital London)

VALDIG-EASL-ERN Webinar: Management of pregnant women with vascular liver disorders and portal Hypertension

Aurélie Plessier, Audrey Payancé (Hôpital Beaujon Paris);
Filipe Nery (Oporto University Hospital Centre);
Arnulf Ferlitsch (St. John of God Hospital, Vienna);
Filipe Andrade (Hospital Pedro Hispano, Matosinhos);
Marco Senzolo (Azienda Ospedaliera Università di Padova)

Nurses Webinar on Training materials for specialist nurses working with rare liver diseases

Neus Llarch Alfonso, Gemma Iserte (Hospital Clínic, Barcelona);
Martina Fellinghauer (AKH Wien);
Dr. Patrizia Künzler (Cantonal Hospital St. Gallen)

The new EASL Clinical Practice Guidelines on the management of cystic liver diseases

Joost Drenth, Thijs Barten (Radboud University Medical Center, Nijmegen);
Richard Taubert (Hannover Medical School);
Frederik Nevens (University Hospitals KULeuven, Belgium)

VALDIG Webinar: Liver and spleen elastography in the diagnosis and management of vascular liver diseases and portal hypertension

Pierre Emmanuel-Rautou (Hôpital Beaujon Paris);
Virgínia Hernández-Gea (Hospital Clínic Barcelona);
Laure Elkrief (Tours University Hospitals);
Annalisa Berzigotti (University Hospital of Bern);
Luis Tellez (Hospital Universitario Ramón y Cajal, Madrid);
Sarwa Darwish Murad (Erasmus MC Rotterdam)

Challenges of diagnosis of cholangiocarcinoma in PSC

Annika Bergquist, Erik von Seth, Aristeidis Grigoriadis (Karolinska University Hospital Stockholm);
Expert panel:
Kristina Ringe, Henrike Lenzen (Hannover Medical School)

Case-based webinar, A rare case of portal hypertension

Edita Kreivėnaitė, Juozas Kupcinskas (Kauno Klinikos);
Expert panel:
Aurélie Plessier (Hôpital Beaujon Paris);
Juan Carlos García-Pagán (Hospital Clínic Barcelona)

Management of Portal Hypertension (CSPH) in PBC

Thomas Reiberger, Lukas Burghart (Medical University of Vienna)

Nurses Webinar: Training program for Patients with Rare Liver Diseases

Martina Fellinghauer (AKH Wien);
Jen Clancy (Royal Free London);
Denise Schäfer (Ordensklinikum Linz);
Neus Llarch Alfonso (Hospital Clínic, Barcelona)

Case-based webinar, A rare case of cholestasis

Gustav Buescher, Marcial Sebode (University Medical Centre, Hamburg-Eppendorf);
Expert Panel:
Annika Bergquist (Karolinska University Hospital Stockholm);
Kristine Wiencke (Oslo University Hospital);
Ansgar W. Lohse (University Medical Centre, Hamburg-Eppendorf)

ERN RARE-LIVER Webinars 2020 to 2021

Date and Topic

Chairs/ Speakers

Link to watch the webinar recording

Update on SARS-COV-2 vaccinations in rare disease patients

Ansgar W. Lohse; Marylyn Addo; Julian Schulze zur Wiesch (University Medical Centre Hamburg-Eppendorf, Germany);
Marc Jansen (ERN RITA, University Medical Centre, Utrecht);
Eduardo López-Granados (ERN TRANSPLANT-CHILD, La Paz University Hospital in Madrid);
Francesco Paolo Russo (University Hospital of Padova)

Congenital Porto-Systemic shunt

Emmanuel Gonzales, Laurent Savale (Hôpital Bicêtre, Paris);
Valérie McLin (University Hospitals Geneva);
Anna Baiges (Hospital Clínic de Barcelona);
Maxime Ronot (Hôpital Beaujon, Paris)

13/10/2021, 14:30 (CET)
ERN TRANSPLANT-CHILD: Liver transplantation in metabolic disease

Carlo Dionisi-Vici (Bambino Gesù Children’s Research Hospital Rome)

Autoimmune sclerosing cholangitis and PSC: the spectrum of bile duct changes from childhood and through adult life.

Marianne Hørby Jørgensen, Henriette Ytting (Rigshospitalet, Copenhagen);
Patrick F van Rheenen (University Medical Center Groningen);
Mette Vesterhus (University of Bergen)

Treatment of Autoimmune Hepatitis

Eleonora De Martin (Hôpital Paul Brousse, AP-HP Paris);
Ansgar W. Lohse, Christina Weiler-Normann (University Medical Centre Hamburg-Eppendorf)

Biliary Atresia and Related Diseases (BARD) webinar

Please find the links to the recordings here

Porto sinusoidal vascular disease

Andrea De Gottardi (Ospedale Italiano di Lugano);
Pierre-Emmanuel Rautou (Hôpital Beaujon, AP-HP Paris)

PBC Therapy

Pietro Invernizzi, Marco Carbone (Ospedale San Gerardo Monza);
Frederik Nevens (University Hospitals KULeuven);
Christophe Corpechot (Hôpital Saint-Antoine Paris)

Combined Hepatocellular-Cholangiocarcinoma: A Global Challenge

Julien Calderaro (Hôpital Henri Mondor, Créteil);
Valérie Paradis (Hôpital Beaujon, AP-HP Paris);
Alejandro Forner González (Hospital Clínic de Barcelona)

Update on Wilson’s Disease therapy and emerging treatment

Karl-Heinz Weiss (Krankenhaus Salem der Evang. Stadtmission Heidelberg)

Alpha-1 Antitrypsin Deficiency in adult and paediatric care

Mathias Ruiz (Hôpital Femme Mère Enfant du CHU de Lyon);
Pavel Strnad (University Hospital Aachen)

Neuromonitoring in pediatric acute liver failure (PALF) – a controversy

Ekkehard Sturm, Johannes Hilberath, Martin Schuhmann, Andrea Bevot (University of Tuebingen, Children´s Hospital)

Cyst Infections

Joost PH Drenth, Thijs Barten, Titus Wijnands, Marten Lantinga (Radboud UMC, Nijmegen)

COVID-19 Webinar organized by the European Commission – DG SANTE with ERN RARE-LIVER

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare professionals at the frontline of the care of COVID-19 patients. On 10 June 2020, Prof. Dr. Ansgar W. Lohse, ERN RARE-LIVER Coordinator, Director and Chairman, I. Department of Medicine in University Medical Center Hamburg-Eppendorf, Germany, Prof. Dr. Jörn M. Schattenberg, Metabolic Liver Research Program, I. Department of Medicine in University Medical Center Mainz, Germany, Priv.-Doz. Dr. med. Julian Schulze zur Wiesch, Medical Specialist in Internal Medicin in University Medical Center Hamburg-Eppendorf all contributed to the webinar entitled, “COVID-19 and Rare Liver diseases”.