ERN RARE-LIVER Webinars

Welcome to the page listing all information regarding the ERN RARE-LIVER Webinar series. You can find information on upcoming webinars and access content created as part of past webinars. Thanks to our members and partners, we have managed to produce quite a number of webinars on specialist disease-specific topics.

Our educational webinars are primarily aimed at physicians, and open to all. They take place on the second Tuesday of the month, at 5 p.m. (CET). If you would like to suggest a topic, the office would be very happy to hear from you.


ERN RARE-LIVER Webinars January to June 2022


Date and Topic

Chairs/ Speakers

More Information

08/02/2022
Case-based webinar, A rare case of cholestatsis

Gustav Buescher, Marcial Sebode (University Medical Centre, Hamburg-Eppendorf)

https://rare-liver.eu/news/detail/case-based-webinar-cholestasis-8222

23/02/2022
Nurses Webinar: Training program for Patients with Rare Liver Diseases

Martina Fellinghauer (AKH Wien);
Jen Clancy (Royal Free London);
Denise Schäfer (Ordensklinikum Linz);
Neus Llarch Alfonso (Hospital Clínic, Barcelona)

https://rare-liver.eu/news/detail/nurses-webinar-230222

08/03/2022
Management of Portal Hypertension (CSPH) in PBC

Thomas Reiberger, Lukas Burghart (Medical University of Vienna)

https://rare-liver.eu/news/detail/webinar-management-of-csph-in-pbc-8322

12/04/2022
Case-based webinar, A rare case of portal hypertension

Edita Kreivėnaitė, Juozas Kupcinskas (Kauno Klinikos)

https://rare-liver.eu/news/detail/case-based-webinar-portal-hypertension-12422

10/05/2022
Challenges of diagnosis of cholangiocarcinoma in PSC

Annika Bergquist (Karolinska University Hospital Stockholm)

https://rare-liver.eu/news/detail/webinar-cholangiocarcinoma-in-psc-10522

14/06/2022
VALDIG Webinar: Vascular liver diseases and portal hypertension

VALDIG

https://rare-liver.eu/news/detail/valdig-webinar-14622

July: Summer Break


ERN RARE-LIVER Webinars 2020 to 2021

To access video content, see links under “More Information”.


Date and Topic

Chairs/ Speakers

More Information

10/11/2020
Cyst Infections

Joost PH Drenth, Thijs Barten, Titus Wijnands, Marten Lantinga (Radboud UMC, Nijmegen)

https://rare-liver.eu/news/detail/webinar-cyst-infection-10-november-2020

15/12/2020
Neuromonitoring in pediatric acute liver failure (PALF) – a controversy

Ekkehard Sturm, Johannes Hilberath, Martin Schuhmann, Andrea Bevot (University of Tuebingen, Children´s Hospital)

https://rare-liver.eu/news/detail/webinar-palf-15-december-2020

12/01/2021
Alpha-1 Antitrypsin Deficiency in adult and paediatric care

Mathias Ruiz (Hôpital Femme Mère Enfant du CHU de Lyon);
Pavel Strnad (University Hospital Aachen)

https://rare-liver.eu/news/detail/webinar-aatd-12-01-2021

09/02/2021
Update on Wilson’s Disease therapy and emerging treatment

Karl-Heinz Weiss (Krankenhaus Salem der Evang. Stadtmission Heidelberg)

https://rare-liver.eu/news/detail/webinar-wilsons-disease-9-2-2021

09/03/2021
Combined Hepatocellular-Cholangiocarcinoma: A Global Challenge

Julien Calderaro (Hôpital Henri Mondor, Créteil);
Valérie Paradis (Hôpital Beaujon, AP-HP Paris);
Alejandro Forner González (Hospital Clínic de Barcelona)

https://rare-liver.eu/news/detail/webinar-rare-liver-tumours-932021

13/04/2021
PBC Therapy

Pietro Invernizzi, Marco Carbone (Ospedale San Gerardo Monza);
Frederik Nevens (University Hospitals KULeuven);
Christophe Corpechot (Hôpital Saint-Antoine Paris)

https://rare-liver.eu/news/detail/webinar-pbc-therapy-1342021

11/05/2021
Porto sinusoidal vascular disease

Andrea De Gottardi (Ospedale Italiano di Lugano);
Pierre-Emmanuel Rautou (Hôpital Beaujon, AP-HP Paris)

https://rare-liver.eu/news/detail/webinar-porto-sinusoidal-vascular-disease-1152021

02-05/06/2021
WCPGHAN with ESPGHAN ERN RARE-LIVER WG meeting

https://www.wcpghan2021.org/

30/06-01/07/2021
Biliary Atresia and Related Diseases (BARD) webinar

https://rare-liver.eu/news/detail/bard-webinar-30-june-01-july-2021

13/07/2021
Treatment of Autoimmune Hepatitis

Eleonora De Martin (Hôpital Paul Brousse, AP-HP Paris);
Ansgar W. Lohse, Christina Weiler-Normann (University Medical Centre Hamburg-Eppendorf)

https://rare-liver.eu/news/detail/webinar-treatment-of-autoimmune-hepatitis-13072021

14/09/2021
Autoimmune sclerosing cholangitis and PSC: the spectrum of bile duct changes from childhood and through adult life.

Marianne Hørby Jørgensen, Henriette Ytting (Rigshospitalet, Copenhagen);
Patrick F van Rheenen (University Medical Center Groningen);
Mette Vesterhus (University of Bergen)

https://rare-liver.eu/news/detail/webinar-asc-psc-14921

13/10/2021, 14:30 (CET)
ERN TRANSPLANT-CHILD: Liver transplantation in metabolic disease

Carlo Dionisi-Vici (Bambino Gesù Children’s Research Hospital Rome)

click here to watch the webinar recording

09/11/2021
Congenital Porto-Systemic shunt

Emmanuel Gonzales (Hôpital Bicêtre, Paris)

https://rare-liver.eu/news/detail/webinar-cpss-91121

17/12/2021
Update on SARS-COV-2 vaccinations in rare disease patients

Ansgar W. Lohse (University Medical Centre, Hamburg-Eppendorf)

https://rare-liver.eu/news/detail/update-on-sars-cov-2-vaccinations-in-rare-disease-patients-tuesday-14-december-2021-1700-cet



COVID-19 Webinar organized by the European Commission – DG SANTE with ERN RARE-LIVER

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare professionals at the frontline of the care of COVID-19 patients. On 10 June 2020, Prof. Dr. Ansgar W. Lohse, ERN RARE-LIVER Coordinator, Director and Chairman, I. Department of Medicine in University Medical Center Hamburg-Eppendorf, Germany, Prof. Dr. Jörn M. Schattenberg, Metabolic Liver Research Program, I. Department of Medicine in University Medical Center Mainz, Germany, Priv.-Doz. Dr. med. Julian Schulze zur Wiesch, Medical Specialist in Internal Medicin in University Medical Center Hamburg-Eppendorf all contributed to the webinar entitled, “COVID-19 and Rare Liver diseases”.