Training for professionals

Patient care will improve if we increase knowledge and teaching. For this reason, training is one of the key activities of our network. This includes the organization of postgraduate schools, workshops and webinars for doctors and student doctors specialising in rare liver diseases. In addition, specialist nurse training is a key part of our activities.


Training videos

Liver transplantation

Autoimmune Hepatitis (AIH)

Click here to view

Primary sclerosing cholangitis (PSC)

Click here to view


Webinars

Our educational webinars are primarily aimed at physicians, but open to all. They take place on the second Tuesday of the month, at 5 p.m. (CET)

Date and Topic

Chairs/ Speakers

More Information

10/11/2020
Cyst Infections

Joost PH Drenth, Thijs Barten, Titus Wijnands, Marten Lantinga (Radboud UMC, Nijmegen)

https://rare-liver.eu/news/detail/webinar-cyst-infection-10-november-2020

15/12/2020
Neuromonitoring in pediatric acute liver failure (PALF) – a controversy

Ekkehard Sturm, Johannes Hilberath, Martin Schuhmann, Andrea Bevot (University of Tuebingen, Children´s Hospital)

https://rare-liver.eu/news/detail/webinar-palf-15-december-2020

12/01/2021
Alpha-1 Antitrypsin Deficiency in adult and paediatric care

Mathias Ruiz (Hôpital Femme Mère Enfant du CHU de Lyon);
Pavel Strnad (University Hospital Aachen)

https://rare-liver.eu/news/detail/webinar-aatd-12-01-2021

09/02/2021
Update on Wilson’s Disease therapy and emerging treatment

Karl-Heinz Weiss (Krankenhaus Salem der Evang. Stadtmission Heidelberg)

https://rare-liver.eu/news/detail/webinar-wilsons-disease-9-2-2021

09/03/2021
Combined Hepatocellular-Cholangiocarcinoma: A Global Challenge

Julien Calderaro (Hôpital Henri Mondor, Créteil);
Valérie Paradis (Hôpital Beaujon, AP-HP Paris);
Alejandro Forner González (Hospital Clínic de Barcelona)

https://rare-liver.eu/news/detail/webinar-rare-liver-tumours-932021

13/04/2021
PBC Therapy

Pietro Invernizzi, Marco Carbone (Ospedale San Gerardo Monza);
Frederik Nevens (University Hospitals KULeuven);
Christophe Corpechot (Hôpital Saint-Antoine Paris)

https://rare-liver.eu/news/detail/webinar-pbc-therapy-1342021

11/05/2021
Porto sinusoidal vascular disease

Andrea De Gottardi (Ospedale Italiano di Lugano);
Pierre-Emmanuel Rautou (Hôpital Beaujon, AP-HP Paris)

https://rare-liver.eu/news/detail/webinar-porto-sinusoidal-vascular-disease-1152021

02-05/06/2021
WCPGHAN with ESPGHAN ERN RARE-LIVER WG meeting

https://www.wcpghan2021.org/

30/06-01/07/2021
Biliary Atresia and Related Diseases (BARD) webinar

https://rare-liver.eu/news/detail/bard-webinar-30-june-01-july-2021

13/07/2021
Treatment of Autoimmune Hepatitis

Eleonora De Martin (Hôpital Paul Brousse, AP-HP Paris);
Ansgar W. Lohse, Christina Weiler-Normann (University Medical Centre Hamburg-Eppendorf)

https://rare-liver.eu/news/detail/webinar-treatment-of-autoimmune-hepatitis-13072021

—— August: Summer break ——

14/09/2021
Autoimmune sclerosing cholangitis and PSC: the spectrum of bile duct changes from childhood and through adult life.

Marianne Hørby Jørgensen, Henriette Ytting (Rigshospitalet, Copenhagen);
Patrick F van Rheenen (University Medical Center Groningen);
Mette Vesterhus (University of Bergen)

https://rare-liver.eu/news/detail/webinar-asc-psc-14921

13/10/2021, 14:30 (CET)
ERN TRANSPLANT-CHILD: Liver transplantation in metabolic disease

Carlo Dionisi-Vici (Bambino Gesù Children’s Research Hospital Rome)

click here to watch the webinar recording

09/11/2021
Congenital Porto-Systemic shunt

Emmanuel Gonzales (Hôpital Bicêtre, Paris)

https://rare-liver.eu/news/detail/webinar-cpss-91121

Further webinars by our partners

Further webinars on liver diseases are regularly provided by our partners: > ESPGHAN <> Young ESPGHAN <> EASL <


COVID-19 Webinar organized by the European Commission – DG SANTE with ERN RARE-LIVER

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare professionals at the frontline of the care of COVID-19 patients. On 10 June 2020, Prof. Dr. Ansgar W. Lohse, ERN RARE-LIVER Coordinator, Director and Chairman, I. Department of Medicine in University Medical Center Hamburg-Eppendorf, Germany, Prof. Dr. Jörn M. Schattenberg, Metabolic Liver Research Program, I. Department of Medicine in University Medical Center Mainz, Germany, Priv.-Doz. Dr. med. Julian Schulze zur Wiesch, Medical Specialist in Internal Medicin in University Medical Center Hamburg-Eppendorf all contributed to the webinar entitled, “COVID-19 and Rare Liver diseases”.


Disease-specific Training material

You can find training material for Healthcare Professionals about diseases covered by ERN RARE-LIVER here . This includes descriptions of the diseases, training videos and leaflets. We are constantly working to add new content.

AIH Histopathology Workshop

Two workshops on histological criteria of Autoimmune Hepatitis (AIH) have been held.
The first workshop was organized as a joint initiative of the ERN RARE-LIVER and the European Society of Pathology (ESP). At this workshop, the world’s experts in the field reached a consensus on an update of the histological criteria for AIH, for the first time also developing criteria for the diagnosis of acute AIH. Furthermore, initial steps for an international study to validate these updated histological criteria for AIH were taken.
The consensus reached at the first meeting was finalized by a final Delphi round. Results were discussed during a second online Workshop. These considerations and recommendations will be published in due course.
The results of these workshops and the planned study are an important step towards improving AIH patient care, since they will help to make a better diagnosis. They will also offer better guidance for treatment and they will thus help to test new drugs for AIH in clinical trials aiming at more specific, less toxic and more effective therapies for AIH.