Training for professionals

Patient care will improve if we increase knowledge and teaching. For this reason, training is one of the key activities of our network. This includes the organization of postgraduate schools, workshops and webinars for doctors and student doctors specialising in rare liver diseases. In addition, specialist nurse training is a key part of our activities.

Training videos

Liver transplantation

Autoimmune Hepatitis (AIH)

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Primary sclerosing cholangitis (PSC)

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Upcoming Webinars

Our educational webinars are primarily aimed at physicians, but open to all. They take place on the second Tuesday of the month, at 5 p.m. (CET)

Date and Topic

Chairs/ Speakers

More Information

Case-based webinar, A rare case of cholestatsis

Gustav Buescher, Marcial Sebode (University Medical Centre, Hamburg-Eppendorf)

Management of Portal Hypertension (CSPH) in PBC

Thomas Reiberger, Lukas Burghart (Medical University of Vienna)

Case-based webinar, A rare case of portal hypertension

Juozas Kupcinskas (Kauno Klinikos)

Challenges of diagnosis of cholangiocarcinoma in PSC

Annika Bergquist (Karolinska University Hospital Stockholm)

VALDIG Webinar: Vascular liver diseases and portal hypertension


July: Summer Break

Past Webinars

Date and Topic

Chairs/ Speakers

More Information

Cyst Infections

Joost PH Drenth, Thijs Barten, Titus Wijnands, Marten Lantinga (Radboud UMC, Nijmegen)

Neuromonitoring in pediatric acute liver failure (PALF) – a controversy

Ekkehard Sturm, Johannes Hilberath, Martin Schuhmann, Andrea Bevot (University of Tuebingen, Children´s Hospital)

Alpha-1 Antitrypsin Deficiency in adult and paediatric care

Mathias Ruiz (Hôpital Femme Mère Enfant du CHU de Lyon);
Pavel Strnad (University Hospital Aachen)

Update on Wilson’s Disease therapy and emerging treatment

Karl-Heinz Weiss (Krankenhaus Salem der Evang. Stadtmission Heidelberg)

Combined Hepatocellular-Cholangiocarcinoma: A Global Challenge

Julien Calderaro (Hôpital Henri Mondor, Créteil);
Valérie Paradis (Hôpital Beaujon, AP-HP Paris);
Alejandro Forner González (Hospital Clínic de Barcelona)

PBC Therapy

Pietro Invernizzi, Marco Carbone (Ospedale San Gerardo Monza);
Frederik Nevens (University Hospitals KULeuven);
Christophe Corpechot (Hôpital Saint-Antoine Paris)

Porto sinusoidal vascular disease

Andrea De Gottardi (Ospedale Italiano di Lugano);
Pierre-Emmanuel Rautou (Hôpital Beaujon, AP-HP Paris)


Biliary Atresia and Related Diseases (BARD) webinar

Treatment of Autoimmune Hepatitis

Eleonora De Martin (Hôpital Paul Brousse, AP-HP Paris);
Ansgar W. Lohse, Christina Weiler-Normann (University Medical Centre Hamburg-Eppendorf)

Autoimmune sclerosing cholangitis and PSC: the spectrum of bile duct changes from childhood and through adult life.

Marianne Hørby Jørgensen, Henriette Ytting (Rigshospitalet, Copenhagen);
Patrick F van Rheenen (University Medical Center Groningen);
Mette Vesterhus (University of Bergen)

13/10/2021, 14:30 (CET)
ERN TRANSPLANT-CHILD: Liver transplantation in metabolic disease

Carlo Dionisi-Vici (Bambino Gesù Children’s Research Hospital Rome)

click here to watch the webinar recording

Congenital Porto-Systemic shunt

Emmanuel Gonzales (Hôpital Bicêtre, Paris)

Update on SARS-COV-2 vaccinations in rare disease patients

Ansgar W. Lohse (University Medical Centre, Hamburg-Eppendorf)

COVID-19 Webinar organized by the European Commission – DG SANTE with ERN RARE-LIVER

In the context of the “COVID-19 Clinical Management Support System” launched by the European Commission, DG SANTE organises a series of webinars to support clinicians and other healthcare professionals at the frontline of the care of COVID-19 patients. On 10 June 2020, Prof. Dr. Ansgar W. Lohse, ERN RARE-LIVER Coordinator, Director and Chairman, I. Department of Medicine in University Medical Center Hamburg-Eppendorf, Germany, Prof. Dr. Jörn M. Schattenberg, Metabolic Liver Research Program, I. Department of Medicine in University Medical Center Mainz, Germany, Priv.-Doz. Dr. med. Julian Schulze zur Wiesch, Medical Specialist in Internal Medicin in University Medical Center Hamburg-Eppendorf all contributed to the webinar entitled, “COVID-19 and Rare Liver diseases”.

Disease-specific Training material

You can find training material for Healthcare Professionals about diseases covered by ERN RARE-LIVER here . This includes descriptions of the diseases, training videos and leaflets. We are constantly working to add new content.

AIH Histopathology Workshop

Two workshops on histological criteria of Autoimmune Hepatitis (AIH) have been held.
The first workshop was organized as a joint initiative of the ERN RARE-LIVER and the European Society of Pathology (ESP). At this workshop, the world’s experts in the field reached a consensus on an update of the histological criteria for AIH, for the first time also developing criteria for the diagnosis of acute AIH. Furthermore, initial steps for an international study to validate these updated histological criteria for AIH were taken.
The consensus reached at the first meeting was finalized by a final Delphi round. Results were discussed during a second online Workshop. These considerations and recommendations will be published in due course.
The results of these workshops and the planned study are an important step towards improving AIH patient care, since they will help to make a better diagnosis. They will also offer better guidance for treatment and they will thus help to test new drugs for AIH in clinical trials aiming at more specific, less toxic and more effective therapies for AIH.