Other projects and cooperation

The CEF is a key funding instrument and provides indispensable support to develop the infrastructure necessary to run a successful ERN. Thanks to CEF funding, we are technically equipped to connect health care providers for online consultation and greatly contribute towards the improvement of rare liver patient care.

https://hadea.ec.europa.eu/programmes/connecting-europe-facility_en

http://www.espghan.org/

The EJP-RD aims to create a comprehensive, sustainable ecosystem allowing a virtuous circle between research, care and medical innovation.

http://www.ejprarediseases.org/index.php/about/

The European Rare Disease Research Coordination and Support Action consortium (ERICA) is a Horizon project in which all 24 European Reference Networks (ERNs) take part, is to build on the strengths of the individual ERNs and create a platform that integrates the research and innovation capacities of all ERNs.

ERICA | The European Rare Disease Research Coordination and Support Action

The French Network for rare liver disease in adults and children.

https://www.filfoie.com/

An independent network of researchers with a common interest in Vascular Liver Diseases.
http://valdig.eu/

Orphanet is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases. Orphanet aims to provide high-quality information on rare diseases, and ensure equal access to knowledge for all stakeholders. Orphanet also maintains the Orphanet rare disease nomenclature (ORPHAcode), essential in improving the visibility of rare diseases in health and research information systems.

https://www.orpha.net/

Find information here: https://yael-stiftung.de/