Contact Information for physicians/patients
ERN RARE-LIVER office: ern.rareliver@uke.de
Particular rare liver disease expertise of the centre
- Autoimmune Liver Diseases are covered by our YAEL centre:
• Autoimmune Hepatitis (AIH)
• Primary Biliary Cholangitis (PBC)
• Primary Sclerosing Cholangitis (PSC)
• IgG4-related Disease
- Biliary Atresia
- Alpha-1-Antitrypsin Deficiency (A1ATD)
- Wilson Disease
- Cystic Liver Disease
- Rare Liver Tumors (Intrahepatic Cholangiocarcinoma and others)
- Liver Disease in Pregnancy
ERN Representatives
-
Ansgar W. Lohse
University Medical Centre Hamburg-Eppendorf, Germany
-
Christoph Schramm
University Medical Centre Hamburg-Eppendorf, Germany
ERN Team and Contact
ERN RARE-LIVER office: ern.rareliver@uke.de
Centre information
The University Medical Centre Hamburg-Eppendorf (UKE), Hamburg, Germany, is one of Europe´s most modern hospitals and has specialists from all fields of medicine. More than 300 different specialty outpatient clinics and more than 1500 inpatient beds provide state-of-the-art patient care and we conduct clinical and basic research. The Martin Zeitz Centre for rare diseases coordinates care for patients with rare diseases. The liver services comprise paediatric and adult specialist care for all liver diseases including liver transplantation. The UKE is one of the largest paediatric transplant units in the world, and has a leading role in liver transplantation for inherited metabolic disorders.
The YAEL outpatient clinic for autoimmune liver diseases is one of the largest outpatient clinics for patients with autoimmune liver diseases in the world. Liver tumors, rare and common, are another main focus of the Hamburg liver centre, as are complications of portal hypertension including vascular liver diseases, polycystic diseases and metabolic liver diseases.
The coordination office of ERN RARE LIVER is led by Prof. Ansgar W. Lohse and is located in the University Medical Centre Hamburg-Eppendorf.