Contact Information for physicians/patients
Contact: +33(0) 4 72 35 70 50
Mail: GHE.HGNP-CRMRchu-lyon.fr
Particular rare liver disease expertise of the centre
- Biliary Atresia
- Alpha-1-Antitrypsin Deficiency (A1ATD)
- Genetic Cholestatic Disease
- Alagille Syndrome
- Wilson Disease
- Autoimmune Hepatitis (AIH)
- Primary Sclerosing Cholangitis (PSC)
- Choledochal Cyst
- Cystic Liver Disease
- Vascular Liver Disease
- Rare liver tumours
- Acute Liver Failure
ERN Representatives
-
Dr Eduardo Couchonnal-Bedoya
-
Prof. Alain Lachaux, MD, PhD
Pediatric hepatologist, gastroenterologist
-
Dr. Mathias Ruiz, MD
Pediatric hepatologist, gastroenterologist
ERN Team and Contact
Project Managers: Dr. Abdelouahed Belmalih ; Dr. Lioara Restier
Pediatric hepatologists: Prof. Alain Lachaux ; Dr. Mathias Ruiz ; Dr. Eduardo Couchonnal ; Dr. Noémie Laverdure ; Dr. Barbara Rohmer
Adult hepatologists: Prof. Jérôme Dumortier ; Dr. Olivier Guillaud ; Dr. Teresa Antonini ; Dr. Domitille Erard, Prof. Fabien Zoulim
Pediatric surgeons: Dr. Rémi Dubois, Dr. Guillaume Rossignol, Dr. Thomas Gelas, Prof. Kayvan Mohkam
Pediatric radiologists: Dr. Loïc Viremouneix, Dr. Nicolas Magand
Neurologists (Wilson’s disease): Dr. Laurence Lion-Francois (pediatric), Dr. Chloé Laurencin (adult)
Contact: +33(0) 4 72 35 70 50, GHE.HGNP-CRMRchu-lyon.fr
Centre information
The Hospices Civils de Lyon (HCL) is the second largest university hospital in France, and is a reference for several rare conditions requiring high level of medical expertise. Therefore, HCL plays an educational role and conducts numerous clinical trials in the fields of rare diseases.
The Department of pediatric hepatology and gastroenterology in HCL is a constitutive reference centre for biliary atresia and genetic cholestasis, and for Wilson’s disease. It is a part of Filfoie, the French network for rare liver diseases. A specialized and multidisciplinary team constitutes this centre, and is involved in the management of rare liver diseases and liver transplantation, from childhood to adulthood.