Contact Information for physicians/patients
Department of Paediatric Hepatology and Liver Transplantation
APHP. Paris-Saclay, Hôpital Bicêtre
78, rue du Général Leclerc
94270 LE KREMLIN-BICÊTRE
France
+33 (0) 1 45 21 31 64
amaria.remil(at)aphp.fr/axelle.cabriolle(at)aphp.fr
Particular rare liver disease expertise of the centre
• Metabolic, Biliary Atresia & Related Diseases :
Biliary atresia, Alpha-1-antitrypsin deficiency, Alagille syndrome, Neonatal sclerosing cholangitis, Bile acid synthesis defect, Progressive familial intrahepatic cholestasis and other genetic cholestasis, Wilson’s Disease, choledochal cyst and other biliary malformations.
• Autoimmune Liver Diseases :
Autoimmune hepatitis and Primary Sclerosing Cholangitis.
• Structural Liver Diseases :
Vascular liver diseases including portal cavernoma, porto-sinusoidal vascular disease, hemangiomas and Congenital portosystemic shunt.
Cystic liver diseases.
ERN Representatives
-
Emmanuel Gonzales
Hépatologie et Transplantation Hépatique Pédiatriques
-
Emmanuel Jacquemin
ERN Team and Contact
Pediatric Hepatology and Liver Transplant Department Physicians:
Pr Emmanuel JACQUEMIN – Assistant Mrs Clarissa DOL: 33(0) 1 45 21 31 69
Pr Emmanuel GONZALES – Assistant Mrs Axelle CABRIOLLE: 33(0) 1 45 21 31 64
Dr Oanez ACKERMANN – Assistant Mrs Clarissa DOL: 33(0) 1 45 21 31 69
Dr Dalila HABES – Assistant Mrs Delphine PICARD: 33(0) 1 45 21 31 70
Dr Bogdan HERMEZIU – Assistant Mrs Stéphanie HERNANDEZ: 33(0) 1 45 21 37 86
Dr Alice THÉBAUT – Assistant Mrs Stéphanie HERNANDEZ: 33(0) 1 45 21 37 86
Dr Joseph COHEN – Assistant Mrs Delphine PICARD: 33(0) 1 45 21 31 70
Dr Marion ALMES- Assistant Mrs Stéphanie HERNANDEZ: 33(0) 1 45 21 37 86
Gastro-intestinal endoscopy:
Dr Oanez ACKERMANN
Dr Mathieu DUCHÉ
Dr Isabelle BOYTCHEV (Diagnostic and therapeutic ERCP)
Other medical department staff:
Ms Laetita CATRY, Healthcare Manager: 33 (0) 1 45 21 37 87
Mrs Annie MASMONTEIL, Nurse Coordinator: 33 (0) 1 45 21 31 74
Mrs Isabelle FRITEAU, Clinical Studies Technician: 33 (0) 1 45 21 37 90
Mrs Amaria REMIL, Clinical Project Manager: 33 (0) 1 45 21 72 71
Mrs Steffie LONGHI, Hospital Secretary: 33 (0) 1 45 21 31 67
Mrs Alexandra FLOURIS, Psychologist: 33 (0) 1 45 21 20 28
Mrs Florence JUILLET-GACE, Social Worker: 33 (0) 1 45 21 32 06
Mrs Joëlle WENZ, Mrs Marie COTREL, Dieticians: 33 (0) 1 45 21 31 05
Mrs Rebecca GORDON, Mrs Marie MOREL, Educators
Mrs Marie GRIALOU, Teacher
Mrs Julia MALPHETTES, psychomotor therapist: 33 (0) 1 45 21 31 47 or 38 51
Mrs Carole VARIN, Speech Therapist: 33 (0) 1 45 21 27 64
Centre information
The Reference centre for biliary atresia and genetic cholestasis, CRAVB-CG (Centre de Référence de l’atrésie des voies biliaires et des cholestases génétiques) is the coordination centre (CRMR) of the French national network for biliary atresia and genetic cholestasis (AVB-CG). The French Ministry of Health has officially accredited this Reference centre as coordinator expert centre for biliary atresia (CRAVB) in December 2005. This accreditation has been renewed and further extended to genetic cholestasis (CRAVB-CG) in May 2017.
The CRAVB-CG is located within the Department of Paediatric Hepatology and Liver Transplantation of Bicêtre Hospital, which belongs to the Public Assistance Hospitals of Paris (AP-HP). The CRAVB-CG coordinates a national network of rare paediatric liver diseases care and surveillance. The network spreads throughout France and includes 2 constitutive reference centres (CRMR), with complementary expertise on paediatric liver diseases, and 5 competence centres (CCMR), providing local patient care and follow-up.
The CRAVB-CG is organized around a multidisciplinary and highly specialized medical team with proven expertise in paediatric liver diseases, paediatric hepatology and liver transplantation, specific medical treatments and innovative therapies, together with related departments specialized in pediatric surgery, pediatric diagnostic and interventional radiology, digestive endoscopy, ERCP, pediatric intensive care and anesthesiology, anatomopathology, biochemistry, toxicology, virology and molecular biology. Department research activities cover mechanisms and treatment of paediatric liver diseases, bile secretion and cholestasis, genetic liver diseases, liver transplantation and innovative therapies.
The CRAVB-CG, together with the CRMVF and the CRMIVB, are the three French reference centres dedicated to rare liver diseases. They therefore belong to Filfoie rare diseases network, of which they constitute integral part. Among the 23 French rare diseases networks (Filières de Santé des Maladies Rares), created by the French Ministry of Health and Solidarity in 2015, as part of the second rare diseases plan (PNMR2), Filfoie is the network dedicated to adult and paediatric rare liver diseases. The purpose of Filfoie network is to manage and coordinate actions by bringing together reference and competence centres, diagnostic laboratories, research units, universities, educational, social and medico-social structures, and patient organisations.