Ruth De Bruyne

MD, PhD, Associate professor Ghent University, Head of clinic department Pediatric Gastroenterology and Hepatology,Ghent University Hospital

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ruth.debruyne@uzgent.be

ERN RARE-LIVER Organisational Structure

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The ERN RARE-LIVER Management Board

The ERN RARE-LIVER Management Board holds regular meetings to consult on the various activities. It is composed of coordination and of members representing the following areas:

  • Coordination
  • Patient representation (ePAG)
  • Clinical Patient Management System
  • Dissemination
  • Registry
  • Quality of Life
  • Hepatology societies (adult and paediatric)
  • Industry relations
  • Clinical practice guidelines
  • Basic research