Ronald Oude Elferink

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ERN RARE-LIVER Organisational Structure

The ERN RARE-LIVER Management Board

The ERN RARE-LIVER Management Board holds regular meetings to consult on the various activities. It is composed of members representing the following areas:

  • Coordination
  • Patient representation (ePAG)
  • Clinical Patient Management System (CPMS)
  • Registry
  • Quality of Life
  • Clinical practice guidelines
  • The three rare liver disease pillars
  • Hepatology societies (adult and paediatric)
  • Basic research
  • Project Management