Clinical Centre of the University of Debrecen
ERN RARE-LIVER Organisational Structure
The ERN RARE-LIVER Management Board
The ERN RARE-LIVER Management Board holds regular meetings to consult on the various activities. It is composed of coordination and of members representing the following areas:
- Coordination
- Patient representation (ePAG)
- Clinical Patient Management System
- Dissemination
- Registry
- Quality of Life
- Hepatology societies (adult and paediatric)
- Industry relations
- Clinical practice guidelines
- Basic research