Nederlandse Leverpatienten Vereniging, Netherlands
ERN RARE-LIVER Organisational Structure
The ERN RARE-LIVER Management Board
The ERN RARE-LIVER Management Board holds regular meetings to consult on the various activities. It is composed of members representing the following areas:
- Coordination
- Patient representation (ePAG)
- Clinical Patient Management System (CPMS)
- Registry
- Quality of Life
- Clinical practice guidelines
- The three rare liver disease pillars
- Hepatology societies (adult and paediatric)
- Basic research
- Project Management