ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Liver transplantation: AN ERN RARE-LIVER Training video

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Liver transplantation: AN ERN RARE-LIVER training video

Aimed at professionals, Martina Sterneck provides an overview of the ways to manage liver transplantation, accompanied by patients who provide accounts of their journeys.


Upcoming Webinar: The new EASL Clinical Practice Guidelines on sclerosing cholangitis, 29 November 2022

We would like to draw your attention to the new EASL Clinical Practice Guideline on Sclerosing Cholangitis, which has been published in June 2022. We are grateful to all the authors and panelists, most of them from ERN centres.

The ERN RARE-LIVER endorses this guideline and we request you to share this with your teams in order to further improve care for our patients with PSC and other forms of sclerosing cholangitis.

NOW ONLINE: Webinar on Management of pregnant women with vascular liver disorders and portal hypertension

Chairs:

Aurélie Plessier/ Filipe Nery

Latest press release: Acute liver inflammation (hepatitis) of unknown origin in children: an update

Unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK) were reported earlier this year. In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) conducted a thorough investigation that did not confirm the alarming observation from the UK in other European countries.


Scientific News