ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Liver transplantation: An ERN RARE-LIVER patient video

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Liver transplantation: AN ERN RARE-LIVER patient video

An organ transplant is a major event in one's life.This video explains how liver transplantation works medically and what it means for the individual. While Prof. Martina Sterneck from the University Meical Centre Hamburg Eppendorf presents the topic as a professional, Stephanie and Hans tell us about life with a new liver. Thank you for trusting us and sharing your story!


ESPGHAN Monothematic Conference Alagille Syndrome, 26 - 28 January 2023 in Athens, Greece

Deadline to register: 15 December, 2022

NOW ONLINE: Webinar on Management of pregnant women with vascular liver disorders and portal hypertension

Chairs:

Aurélie Plessier/ Filipe Nery

Latest press release: Acute liver inflammation (hepatitis) of unknown origin in children: an update

Unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK) were reported earlier this year. In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) conducted a thorough investigation that did not confirm the alarming observation from the UK in other European countries.


Scientific News