ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Wilson disease - An ERN RARE-LIVER training video

A click on the button will establish a connection to YouTube.
This may result in YouTube being able to collect personal information.
Please refer to our Privacy notice for further information.

Wilson disease - An ERN RARE-LIVER training video

This ERN RARE-LIVER training video is intended for physicians treating patients with the hereditary copper storage disease Morbus Wilson. Uta Merle provides an overview of the pathology, diagnosis and treatment from the perspective of international experts and the patient perspective is also provided.


PSC survey: open until 23 January

The ERN RARE-LIVER PSC Working Group has launched a survey for patients to understand the level of care and monitoring that people with PSC receive.


Scientific News