ERN RARE-LIVER

Our mission is to improve the care of rare liver disease patients throughout Europe

Wilson disease: An ERN RARE-LIVER patient video

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Wilson disease: An ERN RARE-LIVER patient video

This ERN RARE-LIVER patient video on Wilson disease explains what life is like with this hereditary copper storage disease. It offers personal insights accompanied by medical statements by Prof. Dr. Uta Merle. Many thanks to Regine for telling us her story.


Latest press release: Acute liver inflammation (hepatitis) of unknown origin in children: an update by the European Reference Network ERN RARE-LIVER

Unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK) were reported earlier this year. In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) conducted a thorough investigation that did not confirm the alarming observation from the UK in other European countries. However, an infectious cause remains the main suspected culprit in this condition. The most recent data suggest a co-infection of adenovirus with an adeno associated virus.

ERN RARE-LIVER Members' Meeting in Hamburg, 09-10 September 2022

We are happy to invite all members and partners of ERN RARE-LIVER to the Members’ Meeting in September 2022.

New EASL Clinical Practice Guidelines on Sclerosing Cholangitis

We would like to draw your attention to the new EASL Clinical Practice Guideline on Sclerosing Cholangitis, which has been published in June 2022. We are grateful to all the authors and panelists, most of them from ERN centres.


Scientific News