ERN RARE-LIVER

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Wilson disease: An ERN RARE-LIVER patient video

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Wilson disease: An ERN RARE-LIVER patient video

This ERN RARE-LIVER patient video on Wilson disease explains what life is like with this hereditary copper storage disease. It offers personal insights accompanied by medical statements by Prof. Dr. Uta Merle. Many thanks to Regine for telling us her story.


ESPGHAN Monothematic Conference Alagille Syndrome, 26 - 28 January 2023 in Athens, Greece

Deadline to register: 15 December, 2022

NOW ONLINE: Webinar on Management of pregnant women with vascular liver disorders and portal hypertension

Chairs:

Aurélie Plessier/ Filipe Nery

Latest press release: Acute liver inflammation (hepatitis) of unknown origin in children: an update

Unexplained cases of acute liver inflammation in children, especially in the United Kingdom (UK) were reported earlier this year. In response, the European Reference Network on Hepatological Diseases (ERN RARE-LIVER) conducted a thorough investigation that did not confirm the alarming observation from the UK in other European countries.


Scientific News