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Wilson disease: An ERN RARE-LIVER patient video
What can the ERN do for patients?
Your doctor remains your single point of contact if you are referred to an ERN centre and each country has specific rules and arrangements for the referral of patient cases to other specialists. Practically speaking, we can provide you with information on your disease or that of your child, help you find a specialist centre, and give you disease specific information. We hope you find our website interesting and informative.
Latest News
Liver Transplantation and Vascular Liver Disorders
This joint VALDIG-ERN-EASL Webinar aims to clarify some of the aforementioned points, while gathering a panel of experts in the field and promoting vivid discussion in order to improve care for these rare and somehow difficult-to-treat patients.
Even though vascular liver disorders are rare reported events, liver transplantation may be considered when acute liver failure occurs, as for acute Budd-chiari syndrome, or complications of portal hypertension arise as in the context of porto-sinusoidal vascular liver disorder.
Yet, few data exist considering indications and outcomes of liver transplantation in these and other rare vascular liver disorders.
Successful Members' Meeting 2023 in Hamburg
It was a great pleasure for the ERN RARE-LIVER office team to welcome many of our members and friends at this year’s Members’ Meeting in Hamburg.
First Youth Panel established by ERN RARE-LIVER
A workshop organised by the ERN RARE-LIVER Transition of Care working group, funded by the Networking Support Scheme of the European Joint Programme on Rare Diseases.
